"my shadow"

We are wrapping up our year for home schooling...
in only a very short time doing it
"my shadow" can now read a book to himself
and is doing so well...
we don't have any stress and tears...
and i think the weight off his shoulders has now
lifted and he can actually learn things and they are sinking in...
we have spent the whole of his school life with
an amazing amount of anxiety, sickness, tears and more
and i kick myself all the time that we didn't do it sooner...
"my shadow" has been sick since really i suppose
before he was born and life can hand out hefty blows
but it is always so upsetting when there babies...
over the 11 years or so we have seen
and meet wonderful parents and children from all walks of life
and spent far to much time in hospitals
and as Christmas approaches i remember them all with fondness,
and wonder how there all doing...
and hope they are all doing as well as "my shadow"
our little guy turns 12 at Christmas
and i know that is a wonderful miracle
that we all only dreamed of coming truethis is a photo of me and him when we could take him home
unfortunately we had to take him back again
but it is a lovely shot because he has no tubes sticking out of his nose
we had to tube feed for 6months after that shot was taken
and so there are not many shots without it...
it will take me a bit to really go into it all
but i feel that there are still so many families
out there still going though it all
that it is hard for me to pretend it didn't all happen
and still isn't...

"our wonderful little guy"
was born with complex congenital heart disease
and has four open heart surgeries and so much other stuff
that i really choose not to remember...

All i can say is i love Christmas day as it means
"my shadow" is another year older
and he is with us...